Brightening Futures: Improving Sexual Health for Adolescent and Young Adult Survivors

Location:
Longaberger Alumnni House - Sanders Grand Lounge
2200 Olentangy River Road
Columbus, OH 43210

Date:
November 14-15, 2019

Thursday, November 14, 2019

 
7:00 am –
8:00 am.
Conference Check-in & Registration
Continental breakfast
8:00 am –
8:30 am
Welcome Remarks
Kristen M. Carpenter, PhD, Conference Chair
Assistant Professor, The Ohio State University
8:30 am. –
9:00 am

State of the Network Address and Annual Member Meeting
Shari Goldfarb, MD
Chair, Scientific Network on Female Sexual Health and Cancer

9:00 am –
9:50 am

Keynote Address: AYA Survivorship
Cynthia Gerhardt, PhD
Professor of Pediatrics and Psychology, The Ohio State University
Director, Center for Biobehavioral Health Nationwide Children's Hospital

9:50 am –
10:05 am

BREAK
10:05 am –  
10:50 am
AYA Sexuality in Survivorship
Natasha Frederick, MD, MPH
Director, Comprehensive Fertility and Sexual Health Team, Connecticut Children's Medical Center
10:50 am –
11:30 am

Paper Session I: Program Development

Bionic Breast
El Pinkerton, MPH, University of Chicago

Development of the Duke Onco-fertility Program for Teens and Young Adults with Cancer
Caroline Dorfman, PhD, Duke University Medical Center

11:30 am –
12:30 pm

LUNCH - Networking & Committee Introductions

12:30 pm –
1:30 pm

International Society for the Study of Women's Sexual Health (ISSWSH) Lecture
Lisa Larkin MD, FACP, NCMP, IF
Lisa Larkin & Associates

1:30 pm –
2:30 pm

Paper Session II: Measurement and Individual Differences

The Bionic Breast Project: Development of a Patient-reported Measure of Breast Sensory Function
in Women with and without a History of Breast Cancer
Emily Abramsohn, MPH, University of Chicago

Accuracy of a Close-coded Patient-reported Survey Tool to Assess Breast Surgery History in the
Context of Care for and Research about Sexual Health after Cancer
Janelle Sobecki-Rausch, MD, MA, University of Wisconsin-Madison

Breast Specific Sensuality and Appearance Satisfaction: A Comparison of Breast Conserving Surgery
and Nipple Sparing Mastectomy
Jesse Casaubon, DO, Warren Alpert Medical School of Brown University

“It’s a Shared Experience:” Navigating Sexual Health in Cancer Survivorship from a Dyadic Perspective
Jessica R. Gorman, PhD, MPH, Oregon State University

2:30 pm –
2:45 pm

BREAK

2:45 pm –
4:00 pm

Perspectives from the Front Line of AYA Sexual Health Care
Survivors and clinicians share experiences of navigating the issues of fertility, dating, sex and intimacy
in the context of AYA cancer

Moderator: Liz Arthur, PhD, APRN-CNP, Research Assistant Professor, The Ohio State University

Stacy Whiteside, CPNP-AC, Fertility & Reproductive Health Program, NCH

Claire Postl, LPCC, ASSECT-certified sex therapist, The Ohio State University

4:00 pm –
5:00 pm

LGBTQ Issues in Cancer Survivorship
Jennifer Vencill, PhD
Assistant Professor, Mayo Clinic, Rochester, Minnesota

5:00 pm –
6:30 pm

BREAK

6:30 pm – 
9:00 pm

Dinner & Patient Perspectives Program

6:30 pm

Welcome and Hors d'oeuvres

7:15 pm

Dinner

8:15 pm

Patient Perspectives Program
Erica Mantell, MD

8:45 pm  Closing Remarks

Friday, November 15, 2019

7:00 am –
8:00 am

Breakfast and Poster/Networking Session

Sexuality, Intimacy & Menopause for Cancer Survivors and Previvors: Case Reports
Johanna D’Addario, MHS, PA-C, Yale New Haven Hospital

Adolescent and Young Adult (AYA) Survivors of Cancer Report Poorer Sexual Outcomes (behavior,
function, affect, cognition) than Age-matched Controls
Dania Dallal, The Ohio State University

Are Questions about Sexual Health a More Robust Predictor of Help Seeking Behavior among
Gynecological Cancer Patients than Standard Distress Screening Items?
David J. Finitsis, PhD, Hartford Healthcare Cancer Institute

Vaginal Dilator Education after Radiation in Gynecologic Oncology Patients
Allyson M. Jang, MD, University of California Davis

A Novel Tapered Applicator for Post-hysterectomy Vaginal Vault Brachytherapy: Improving Patient
Comfort
Amandeep R. Mahal, BS, Yale School of Medicine

Perceptions of Sexual Health and Intimacy among Women Treated for Gynecologic and Breast
Cancers
Sheyla P. Medina, BA, Warren Alpert Medical School of Brown University

Quality of Life and Cancer: Women’s Comprehensive Gynecologic and Sexual Health Program
at an Oncologic Center in Brazil Northeast
Nathalia M. Ramalho, MD, Instituto de Medicina Integral Professor Fernando Figueira

Abuse History and Sexual Function Among Female Cancer Survivors Attending Integrative
Sexual Health Clinics
Janelle Sobecki-Rausch, MD, MA, University of Wisconsin-Madison

8:00 am –
8:30 am

Welcome
Kristen M. Carpenter, PhD, Conference Chair

Trainee Research Award
Developing a Mobile Technology-based (mLearning) Intervention to Enhance Breast Cancer
Clinicians’ Communication about Sexual Health: Results from Formative Interviews
Lauren A. Zimmaro, PhD, Fox Chase Cancer Center

8:30 am –
9:30 am

Onco-fertility for Female Survivors
Leslie Appiah, MD
Associate Professor, Obstetrics and Gynecology, University of Colorado School of Medicine
Division Chief, General Obstetrics and Gynecology
Director, Fertility Preservation and Reproductive Late Effects Program at the Colorado
Cancer Center and Children’s Hospital Colorado Center for Cancer and Blood Disorders

9:30 am –
10:45 am

Paper Session III: Interventions

Understanding Sexual Help-seeking for Women with Breast Cancer: How Do Women Who Seek Help
Differ from Those Who Do Not?
Jennifer Barsky Reese, PhD, Fox Chase Cancer Center

Sexual Health and Relationship Enhancement (SHARE) for Women with Breast Cancer: Results from
a Clinical Trial
Kristen M. Carpenter, PhD, The Ohio State University

Pink Body Spirit: A Remotely-delivered, Peer-moderated Physical Activity Intervention to Improve
Quality of Life in Younger Breast Cancer Survivors
Lauren S. Weiner, BA, University of California, San Diego

Improvement in Sexual Function after Ovarian Suppression: Sexual Health and Rehabilitation after
Ovarian Suppression Treatment for Young Breast Cancer Survivors (SHARE-OS)
Sharon L. Bober, PhD, Dana-Farber Cancer Institute/Harvard Medical School

Fractional CO2 Laser Therapy for Genitourinary Syndrome of Menopause (GSM) in Gynecologic
Cancer Survivors
Allison Quick, MD, The Ohio State University

10:45 am –
11:00 am
BREAK
11:00 am –
12:00 pm

Meet-the-Expert Roundtable Discussions & Networking

The Team Approach to Survivorship Care: Who's on the Team and Why
Carol Kuhle, DO, MPH & Jeanne Carter, PhD

The Role of the Advance Practice Provider
Lori Seaborne, PA & Elizabeth Gandee, APRN, CNP

Building and Maintaining a Clinical Program in an Academic Setting
Dave Kushner, MD & Stacy Lindau, MD, MAPP

Measurement and Patient-reported Outcomes
Kathryn Flynn, PhD & Emily Abramsohn, MPH

Investigator-initiated Trials/Building a Research Program
Jennifer Reese, PhD & Kristen Carpenter, PhD

12:00 pm – 
12:30 pm
Closing Address
Sharon Bober, PhD
Assistant Professor, Psychiatry, Harvard Medical School
Director, Sexual Health Program, Dana-Farber Cancer Institute
Chair Elect, Scientific Network on Female Sexual Health and Cancer